CILA

[I] make no pretense of being the last word on the subject of autistic children. …more appropriate to call it one of the first words.

— Rosalind Oppenheim, Founder of Rimland
How Much Do We Invest into Supporting People in the Community?

dollar-941246_640Springfield social service lobbyists Don Moss and Associates issued a statement on the facts and figures behind state funding for community integrated living in Illinois.

How Much Do We Invest into Supporting People in the Community?

  • There are 6 times the number of people served in the community for about half of what it cost to serve 1653 people in State Operated Developmental Centers (SODCs).
  • The person with the highest need in the community still gets $404.83 less PER DAY than the lowest per day rate in the SODC
  • Although there are many people who believe only those with low support needs are served in the community, the majority of the people served in the community fall between the moderate and high level of need.

Costs per Resident at Illinois State Institutions

serving People with Developmental Disabilities

Facility Number of Residents as of 6/30/2016 Daily *Interim Rate Per Person Annual *Interim Rate Per Person as of 6/30/2016 Total Interim Rate per facility as of 6/30/2016
Mabley, Dixon 106 $683.15 $249,349.75 $26.4 M
Kiley, Waukegan 191 $802.33 $292,850.45 $55.9 M
Fox, Dwight 105 $799.41 $291,784.65 $30.6 M
Choate, Anna 172 $601.54 $219,562.10 $37.8 M
Murray, Centralia 208 $880.72 $321,462.80 $66.9 M
Ludeman, Park Forest 392 $674.62 $246,236.30 $96.5 M
Shapiro, Kankakee 479 $711.12 $259,558.80 $124.3 M
TOTAL 1653 $438.4 M

 *The interim rate listed is a temporary estimated rate that is used until facilities’ cost reports are filed after the end of the fiscal year or other cost reporting issues are resolved.  Final rates will be established at a later date. The building maintenance and day training costs are included in these figures, however other costs such as workers’ compensation and capital improvements are not included in the DHS/DDD budget but rather another State agency’s budget.

Costs per Resident in Community 24 Hour/Foster Care CILA

Group Homes serving People with Developmental Disabilities

Level of

Support

Need

Number of Rates Approved Percent of Total **Average Annual Topline Rate (residential) Day Training Cost Average Daily Rate Per Person inc. DT Total Average Topline Rate including DT

 

Total Rate Per Group as of 6/30/2016
Low (ICAP 70+) 709 6.8% $41,454 $11,429 $144.88 $52,883 $37.5 M
Moderate (40-69) 5,747 55.5% $50,833 $11,429 $170.58 $62,262 $357.8 M
High (1-39) 3,908 37.7% $60,370 $11,429 $196.71 $71,799 $280.6 M
TOTAL 10,364     $675.9

** These figures are from the last CILA Rates Update 6/30/2016 for High, Moderate and Low Need individuals in 24 hour CILA Services. 

As we move forward in educating the public about the great works that community providers do and the positive outcomes that the majority of people supported in the community have, it is important that the investment side of the equation is presented.

This information is provided not to show how much more cost effective it is to support people in the community – although we know even when adequately funded it would still be more cost effective – but to show how little the state of Illinois has invested into the Community System as compared to the SODC system.

Troubling Chicago Tribune Investigation Exposes Neglect of Adults with Disabilities

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In a shocking series of November reports, the Chicago Tribune revealed an unprecedented investigation of more than 1,000 previously undisclosed incidents of neglect, abuse, serious harm, and suspicious deaths in Illinois’ taxpayer-funded group homes.

In the first comprehensive accounting of mistreatment inside Illinois’ taxpayer-funded group homes and their day programs, the Tribune uncovered a system where caregivers often failed to provide basic care while Department of Human Services regulators obscured evidence of neglect from the public and relied on group home workers to investigate incidents of harm and death.

Bill Egan, Rimland board member and sibling of a Rimland resident, offered the following comments on the disturbing Tribune findings:

“Recent articles bringing area group home inadequacies to light were very shocking to me. It’s disconcerting to know that incompetent organizations are putting the disabled at risk through negligence and the willful violation of their rights. This vulnerable population, who needs protection from abuse and harm, has been let down by these institutions and the state itself. Knowing these substandard situations can and do exist, it makes me thankful to be a part of the Rimland family. Our loved ones receive an unparalleled level of care under the heartfelt compassion of everyone at Rimland. Not only am I thankful, I also have renewed energy and determination to advocate for the rights of my brother and others like him. Join me this holiday season in being thankful for what we have and vigilant in preserving the future of our loved ones at Rimland.”

Follow the links below to read the Chicago Tribune series:

http://www.chicagotribune.com/news/watchdog/ct-group-home-investigations-cila-met-20161117-htmlstory.html

http://www.chicagotribune.com/news/watchdog/ct-illinois-group-homes-cila-investigation-20161120-htmlstory.html